Promoting Agency Through Innovative Education and Networked Teams (PATIENT)

Welcome to PATIENT, a groundbreaking initiative led by Dr. Jillianne Code, focusing on enhancing patient agency in research (PAIR). Our mission is to empower patients to become active partners in medical research, transforming them from passive subjects to essential contributors.

What is Patient Agency in Research (PAIR)?

PAIR is the concept that patients are not just participants in research studies, but partners who have the power to shape the research process. This approach is inspired by the work of renowned psychologist Albert Bandura and further developed by Dr. Jillianne Code and other scholars. Our aim is to ensure that patients’ voices and perspectives are integral to the direction and outcomes of research.

How is PAIR Practiced?

PAIR is demonstrated through four key functions:

• Intentionality: Patients set goals and develop action plans for their involvement in research.
• Forethought: Patients set objectives and anticipate the outcomes of their actions, guiding and motivating their engagement.
• Self-Reactiveness: Patients actively plan and regulate their participation in the research process.
• Self-Reflectiveness: Patients assess their involvement, reflecting on their participation and making adjustments as needed.

Join us in this exciting journey to redefine the role of patients in research. Your insights and involvement are not just valuable—they are essential to the success of medical research. Together, we can turn participants into partners and ensure that research truly benefits from the rich, lived experiences of patients.