PUBLICATIONS
Code, J From patient to agent Journal Article In: Journal of Cardiac Failure, vol. 8, no. 7, pp. 1230-1234, 2022. BibTeX | Tags: advocacy, autoethnography, editorial, heart failure | Links: Code, J The democratization of heart failure: Connecting voices from Canada’s other pandemic Conference University of Toronto EMPOWER-HF Virtual Roundtable, Toronto, ON [Virtual], 2020. Abstract | BibTeX | Tags: autoethnography, democratization, heart failure, learner agency, RCT Roston, T M, Bains, M, Code, J, Virani, S A Heart failure in the young: The patient perspective and lived-experience Journal Article In: Canadian Journal of General Internal Medicine, vol. 15, no. SP1, pp. 36–39, 2020. Abstract | BibTeX | Tags: autoethnography, heart failure, lived experience | Links: Code, J, Gunther, P The role of mental health studies in cardiovascular trials Conference 16th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2019. Abstract | BibTeX | Tags: autoethnography, heart failure, RCT Code, J, Sloan, J 16th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2019. Abstract | BibTeX | Tags: autoethnography, heart failure, RCT Code, J, Verbakel, M Patient reported outcomes: Why CV prevention trials are critical for patients Conference 16th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2019. Abstract | BibTeX | Tags: autoethnography, RCT Code, J, Others, Canadian Cardiovascular Congress Montreal, QUE, 2019. Abstract | BibTeX | Tags: autoethnography, heart failure, RCT Code, J, Bains, M Patient and family carer round table Presentation 2019, (Heart Failure Update 2019, Montreal, QUE.). Abstract | BibTeX | Tags: autoethnography, heart failure Code, J Patient-led advocacy to support health system transformation and improved heart failure care Conference American College of Cardiology Annual Meeting (ACC.19) New Orleans, LA, 2019. Abstract | BibTeX | Tags: advocacy, autoethnography, heart failure, social media Code, J I am the clinical trial Journal Article In: JACC: Heart Failure, vol. 7, no. 5, pp. 439-441, 2019. BibTeX | Tags: autoethnography, clinical trial, heart failure, qualitative Code, J, &, Others CV Trial related questions patients want answered Conference 15th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2018. Abstract | BibTeX | Tags: autoethnography, heart failure, RCT Code, J, Pike, R The lived experience of cardiovascular nursing: A patient’s perspective Conference Canadian Council for Cardiovascular Nurses Fall Conference Vancouver, BC, 2017. Abstract | BibTeX | Tags: autoethnography, heart failure, lived experience Code, J A patient’s voice Conference 2017. Abstract | BibTeX | Tags: autoethnography, heart failure Catlin, B, Code, J Canadian Council for Cardiovascular Nurses Spring Conference Victoria, BC, 2017. Abstract | BibTeX | Tags: autoethnography, heart failure Code, J The who, what, why & how of advocacy for heart failure patients Presentation 2017. Abstract | BibTeX | Tags: advocacy, autoethnography, heart failure2022
@article{Code2022c,
title = {From patient to agent},
author = {J Code},
doi = {https://doi.org/10.1016/j.cardfail.2022.04.007},
year = {2022},
date = {2022-07-01},
urldate = {2022-06-17},
journal = {Journal of Cardiac Failure},
volume = {8},
number = {7},
pages = {1230-1234},
keywords = {advocacy, autoethnography, editorial, heart failure},
pubstate = {published},
tppubtype = {article}
}
2020
@conference{Code2020e,
title = {The democratization of heart failure: Connecting voices from Canada's other pandemic},
author = {J Code},
year = {2020},
date = {2020-06-19},
publisher = {EMPOWER-HF Virtual Roundtable},
address = {Toronto, ON [Virtual]},
organization = {University of Toronto},
abstract = {Code, J. (2020, June). The democratization of heart failure: Connecting voices from Canada's other pandemic. In H. Ross (Chair), EMPOWER-HF Virtual Roundtable, Toronto, ON.},
keywords = {autoethnography, democratization, heart failure, learner agency, RCT},
pubstate = {published},
tppubtype = {conference}
}
@article{roston2020heart,
title = {Heart failure in the young: The patient perspective and lived-experience},
author = {T M Roston and M Bains and J Code and S A Virani},
doi = {10.22374/cjgim.v15iSP1.418},
year = {2020},
date = {2020-01-01},
journal = {Canadian Journal of General Internal Medicine},
volume = {15},
number = {SP1},
pages = {36–39},
abstract = {Heart failure (HF) is an often-debilitating syndrome that carries a lifelong burden of increased morbidity and mortality. While most affected individuals are elderly with ischemic heart disease, there are subsets of younger individuals who will develop HF. In this group, non-ischemic causes of cardiomyopathy are more common, optimal therapies are less clear, and the personal and societal impact is often greater. The lived-experience of younger patients highlights several unmet needs not addressed by large HF trials that influence survival, personal and financial wellness and return to activities of daily living. In Canada, there is an increasing focus on the patient perspective, especially amongst young individuals, when devising guidelines, policies and promoting advocacy in HF. This article describes the lived-experience of HF through the case example of a young patient, summarizes the clinical challenges in this age-group, and discusses opportunities to elevate the patient experience of care as a performance indicator.},
keywords = {autoethnography, heart failure, lived experience},
pubstate = {published},
tppubtype = {article}
}
2019
@conference{Code2019d,
title = {The role of mental health studies in cardiovascular trials},
author = {J Code and P Gunther},
editor = {C Chauhan and D Janssen},
year = {2019},
date = {2019-12-02},
address = {Washington, DC},
organization = {16th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Code, J. & Gunther, P. (2019, December). The role of mental health studies in cardiovascular trials. In C. Chauhan & D. Janssen (Chairs), Empowering patients to be active participants in clinical trials. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
@conference{Code2019c,
title = {How to report and critique major trials in cardiology from a statistical perspective, including recent statistical advances – Patient viewpoints},
author = {J Code and J Sloan},
editor = {S Pocock and J Gregson},
year = {2019},
date = {2019-12-01},
address = {Washington, DC},
organization = {16th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Code, J. & Sloan, J. (2019, December). How to report and critique major trials in cardiology from a statistical perspective, including recent statistical advances – Patient viewpoints. In S. Pocock & J. Gregson (Chairs), CVCT Masterclass. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
@conference{Code2019e,
title = {Patient reported outcomes: Why CV prevention trials are critical for patients},
author = {J Code and M Verbakel},
editor = {B Pitt and H Ventura},
year = {2019},
date = {2019-12-01},
address = {Washington, DC},
organization = {16th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Code, J. & Verbakel, M. (2019, December). Patient-reported outcomes: Why CV prevention trials are critical for patients. In B. Pitt & H. Ventura (Chairs), Diet, hypertension and CV prevention trials. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, RCT},
pubstate = {published},
tppubtype = {conference}
}
@conference{Code2019f,
title = {Shifting the research to action paradigm: The complex connections among cardiovascular disease, stroke and vascular cognitive impairment},
author = {J Code and Others},
editor = {Heart Stroke Foundation},
year = {2019},
date = {2019-10-27},
address = {Montreal, QUE},
organization = {Canadian Cardiovascular Congress},
abstract = {Code, J. et al. (2019, October). Shifting the research to action paradigm: The complex connections among cardiovascular disease, stroke and vascular cognitive impairment [Panel]. Invited panel at the Heart and Stroke Foundation Spotlight Session at the Canadian Cardiovascular Congress, Montreal, QUE.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
@misc{Code2019k,
title = {Patient and family carer round table},
author = {J Code and M Bains},
year = {2019},
date = {2019-05-18},
abstract = {Code, J. & Bains. M. (2019, May). Patient and family carer round table [Chairs]. Heart Failure Update 2019, Montreal, QUE.},
note = {Heart Failure Update 2019, Montreal, QUE.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {presentation}
}
@conference{Code2019h,
title = {Patient-led advocacy to support health system transformation and improved heart failure care},
author = {J Code},
editor = {A Krahn and J Pineiro and P Torres},
year = {2019},
date = {2019-03-17},
address = {New Orleans, LA},
organization = {American College of Cardiology Annual Meeting (ACC.19)},
abstract = {Code, J. (2019, March). Patient-led advocacy to support health system transformation and improved heart failure care. In A. Krahn, J. Pineiro & P. Torres (Chairs), Heart failure advocacy and international perspectives. Invited symposium at the American College of Cardiology Annual Meeting (ACC.19), New Orleans, LA, USA.},
keywords = {advocacy, autoethnography, heart failure, social media},
pubstate = {published},
tppubtype = {conference}
}
@article{Code2019,
title = {I am the clinical trial},
author = {J Code},
year = {2019},
date = {2019-01-01},
journal = {JACC: Heart Failure},
volume = {7},
number = {5},
pages = {439-441},
keywords = {autoethnography, clinical trial, heart failure, qualitative},
pubstate = {published},
tppubtype = {article}
}
2018
@conference{Code2018,
title = {CV Trial related questions patients want answered},
author = {J Code and Others &},
editor = {C Chauhan and A Lenselink},
year = {2018},
date = {2018-12-02},
address = {Washington, DC},
organization = {15th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Ahmed, C., Chauhan, C., Code, J., Dahlgren, K., Jefferson, N. et al. (2018, December). CV Trial related questions patients want answered [Panel, listed alphabetically]. In C. Chauhan & A. Lenselink (Chairs), Invited panel at the 15th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
2017
@conference{Code2017b,
title = {The lived experience of cardiovascular nursing: A patient’s perspective},
author = {J Code and R Pike},
year = {2017},
date = {2017-10-14},
address = {Vancouver, BC},
organization = {Canadian Council for Cardiovascular Nurses Fall Conference},
abstract = {Code, J. & Pike, R. (2017, October). The lived experience of cardiovascular nursing: A patient’s perspective [Keynote]. In Canadian Council for Cardiovascular Nurses Fall Conference, Vancouver, BC.},
keywords = {autoethnography, heart failure, lived experience},
pubstate = {published},
tppubtype = {conference}
}
@conference{Code2017c,
title = {A patient’s voice},
author = {J Code},
year = {2017},
date = {2017-06-04},
abstract = {Code, J. (2017, June). A patient’s voice [Keynote]. In M. Toma, K. Ramanathan & H. Nazzari (Chairs), UBC Heart Failure Symposium, Vancouver, BC.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {conference}
}
@conference{Catlin2017,
title = {The evolution of BC's provincial heart failure strategy: It's influence on clinical practice and patient care},
author = {B Catlin and J Code},
year = {2017},
date = {2017-05-28},
address = {Victoria, BC},
organization = {Canadian Council for Cardiovascular Nurses Spring Conference},
abstract = {Catlin, B. & Code, J. (2017, May). The evolution of BC's provincial heart failure strategy: It's influence on clinical practice and patient care [Keynote]. In Canadian Council for Cardiovascular Nurses Spring Conference, Victoria, BC.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {conference}
}
@misc{Code2017e,
title = {The who, what, why & how of advocacy for heart failure patients},
author = {J Code},
year = {2017},
date = {2017-05-20},
abstract = {Code, J. (2017, May). The who, what, why & how of advocacy for heart failure patients [Invited Session]. In Heart Failure Update, Canadian Heart Failure Society, Toronto, ON.},
keywords = {advocacy, autoethnography, heart failure},
pubstate = {published},
tppubtype = {presentation}
}